This type of medical registry will only enhance value for patients, for the pharmaceutical and device industries, and for payers and administrators in augmenting quality patient care.Ĭopyright © 2019 The Society of Thoracic Surgeons.
A futuristic medical registry will be Internet based and require a higher degree of collaboration and harmonization to meet societal demand for timely "real world" data in measuring value delivered and accountability. Quality data entry will become more user friendly and at reduced cost. Measurement of surgical innovations by registry is a new challenge. Device manufacturers have upgraded data generated by using unique identifiers and device-generated surveillance alerts. The pharmaceutical industry has accurate cost usage data in many jurisdictions. The growth in the electronic health record for individual patients and hospitals provides an online wealth of data. Current medical registries benefit from the explosion in medical informatics. Patients are the ultimate beneficiary in terms of quality care. Payers and administrators depend on medical registries to measure cost effectiveness (value). Surgical disciplines use registry data to discover early device or prosthesis failures. Their role in postmarketing pharmacosurveillance is effective in detecting early adverse events and long-term benefits. Medical registries may be office or hospital based, state/provincial, national, or more recently, global. Observational studies are used to establish effectiveness whereas randomized clinical trials assess efficacy in an experimental manner targeting a carefully selected population of patients. Registry-based medical research is an important tool in assessing health care interventions in the general population.
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